Welcome to the
Rett Syndrome Association of
Ireland’s Website
The Rett Syndrome Association of Ireland is an association of parents and families of people affected with Rett Syndrome and other related disorders.
Rett Syndrome is a rare neurodevelopment disorder resulting in learning and physical disability. It affects girls almost exclusively. It often features repetitive and stereotypical hand gestures. The condition usually affects girls more than boys.
We provide support and information to each other and to families who have received a new diagnosis
We aim to raise awareness among medical and other professionals who work with people affected by Rett Syndrome and other related disorders, as well as public awareness of the conditions, and to encourage and assist Research.
The Rett Syndrome Association of Ireland is an association of parents and families of people affected with Rett Syndrome and other related disorders.
The association is a member of the Health Research Charities Group, and we are pleased to announce that we are accepting applications for financial support for research projects as part of the HRCI-HRB Joint Funding Scheme 2024. https://hrci.ie/joint-funding-scheme
Research projects will relate to Rett Syndrome with an emphasis on Public and Patient Involvement(PPI). The total anticipated funding is €50,000, payable over one to three years.
Applicants can email Dr Jamie Maguire, (Research Support Officer of the Association) at info@rettsyndrome.ie with initial proposals of an intention to submit by 20th of October 2023. Full applications must be received by 5pm the 7th of November 2023.
