The Rett Syndrome Association of Ireland

Archive

Category Archives: News

18

May 15

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€7300 raised by Grainne Barrett for climbing Mt Kilimanjaro.

Last October, Grainne Barrett climbed Mt Kilimanjaro in aid of The Rett Syndrome Association of Ireland. She raised an amazing €7300 for the association. Thank you Grainne from all of us. This money along with other donations will go towards research. If anybody want to help raise funds for the association please get in contact.

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18

May 15

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Text RETT to 50300

We now have a new Text Donation system in place. Text the word RETT to 50300 to donate €4 to The Rett Syndrome Association of Ireland. 100% of your donation goes to The Rett Syndrome Association of Ireland across most network operators. Some operators apply VAT which means that a minimum of €3.25 will go to […]

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04

Sep 14

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Family Weekend 2014

We are very pleased to announce our  Family Weekend on the 3rd – 5th October in the Sheraton Hotel, Athlone, Co. Westmeath. We are pleased and delighted that once again the esteemed Meir Lotan, Physiotherapist & Cochavit Elefant, Music Therapist from Israel will be attending this year. As with other years it will be good […]

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04

Mar 14

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Womens Mini Marathon 2014

2014 Flora Women’s Mini Marathon registration open! For all those ladies feeling energetic this is a wonderful way to raise much needed money for Rett Syndrome Ireland. Get your friends and family on board and together you can make a very valuable difference to the lives of girls from all over Ireland who have Rett Syndrome. […]

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22

Jan 14

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Happy New Year

The committee would like to wish everyone a happy, peaceful and prosperous 2014. After a very exciting and action packed 2013 in which we celebrated our 10th Anniversary we have a number of exciting events lined up in the coming months which we will start announcing in the coming weeks so keep an eye out […]

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04

Dec 13

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10th Anniversary Family Weekend

Our 10th Anniversary Family Weekend was a wonderful success with attendances up on previous years for the main part in response to the calibur of speakers who kindly give of their time to attend. Meir Lotan & Cochavit Elefant gave two great seminars in the morning session on their specialities Physiotherapy & Music Therapy ...

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10

Jul 13

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Charity Walk in the Mourne Mountains – 30th June 2013

Every year Politicians from all parties in  the Oireachtas & Seanad take part in a Charity walk to raise funds for a nominated Charity. This year for the first time ever , the event included Politicians from the Northern Assembly also. We were delighted that Rett Syndrome & CDKL5 were chosen as the nominated charity for ...

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10

Jul 13

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Bam Contractors Cycle Challenge raises €40,000 for our Association

Over 100 of the Satff & Management of Bam Contractors took part in a 248km  Cycle Challenge from their office in Little Island , Cork ,  to their office in Kill , Co Kildare on 27th & 28th June and raised a staggering €40,000 for our Association in the process. The event was launched in […]

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23

Jun 13

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Recent Visit to Aras an Uachtarain

On Monday 17th June we were delighted that Rett Syndrome Ireland’s 10 year Anniversary was recognised with an invitation to visit Aras an Uachtarain. On a beautiful sunny afternoon 14 of our wonderful girls together with their families were welcomed by Sabina Higgins on behalf of her husband President Michael D. Higgins to Aras ...

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